Table 1 Relationship of consent to store blood with consent for other aspects of the study*. Among 1,004 urban Indigenous Australian research participants in 2003–2005.
Proportion who gave consent for study staff to: | Agreed to long-term storage (n = 550) % | Did not agreed to long-term storage (n = 454) % | Total (n = 1,004) % |
|---|---|---|---|
Contact family and friends to help find participant | 96.6 | 85.5 | 91.5 |
Contact participant to discuss continuation of the study beyond five years | 93.1 | 85.9 | 89.8 |
Access information from health care provider | 92.9 | 84.6 | 89.1 |
Access information from local Registrar of Births, Deaths and Marriages and the National Death Index | 94.6 | 81.5 | 88.6 |
Access information from pathology services | 92.4 | 82.2 | 87.8 |
Access information from local Department of Health and Community Services | 92.2 | 80.4 | 86.8 |
Contact participant to discuss other related studies | 88.2 | 73.6 | 81.6 |
Access information from the sole local private hospital | 85.3 | 69.6 | 78.2 |
Long-term storage of excess blood samples | --- | --- | 54.8 |